Research studies

Researchers are always looking for people affected by osteoporosis to get involved in their research. This could be by completing a survey or attending a clinical trial.

On this page, you can find information about current research studies into osteoporosis and bone health, and how you may be able to help.

Some studies will need people affected by osteoporosis, sometimes with a particular medical history. Other studies will need help from healthcare professionals. You may not always find a study listed here that is relevant to you.

This page is regularly updated with new opportunities. Follow us on Facebook or Twitter to find out the latest opportunities as they are added, or subscribe to updates.

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Research body: Different universities, hospitals and drugs companies that are undertaking research.

About the opportunity: The National Institute for Health Research (NIHR) website lists all the studies taking place in the UK.

How can you help?

You can browse current opportunities on the NIHR website or create a free account and choose the areas of health and care you’re interested in and the NIHR will send you information on studies that match your interests.

To take part you can contact the study team via the link to their website or contact details on the study page. The study team will be your point of contact from here.

Click on the studies below, to find out more. 

Presentation and clinical outcome of pregnancy-associated osteoporosis

What is the feasibility of testing a vertebral fracture screening tool in a real-world primary care setting? 

AI-enableD bone health Optimisation osteoPorosis for Treatment 

Opportunistic fragility fracture risk estimates from radiographs

PHOENIX-Feasibility: picking up hidden osteoporosis effectively during normal CT imaging without additional x-rays

OSTEOMICS: Identifying regulators of bone homeostasis 

Being involved and informed: Improving appointments about your bone health 

RESTORE - Study of AGN1 LOEP to prevent secondary hip fractures

Smart wearable device (gaitQ): Walk better project 

Improving uNderstanding of bone DEnsity (dXa) scans (INDEX)

Testing a vertebral fracture screening tool for use in older men with back pain

National registry of rare kidney diseases 

PHarmacist led Osteoporosis Review for optimising Medicines (PHORM)*

The living with a long-term condition study

Implementing improved fracture risk assessment in primary care: Enhancing capture and quality of self-reported risk factors in electronic health records in primary care *

*associated with a Royal Osteoporosis Society Research Grant

PLEASE NOTE: This list is updated monthly, for the most up-to-date list please visit the NIHR website.

Any questions?

You can find more information on the NIHR website.

Research body: The National Institute for Health Research (NIHR)

You can help if:

You have osteoporosis or care for those who do.

About the opportunity:

The NIHR funds health research so professionals, policy makers and patients can make informed decisions based on research.

It needs people with everyday experience of osteoporosis to comment on research proposals related to the condition.

When can you help?

This opportunity is ongoing.

How can you help?

By becoming a reviewer. Reviewers look at a research proposal or commissioning brief and answer key questions for the board or panel.

Each review can be done in your own time, to an agreed deadline.

Any questions?

Find out more on the NIHR website.


Research body: The National Institute for Health Research (NIHR)

You can help if:

Generally speaking - you have used health or social care services, are interested in research and current affairs, and:

  • Have experience of reading, understanding and reviewing written documents
  • Have experience of attending formal meetings

Previous or current healthcare professionals are not eligible to be a public member of a board.

About the opportunity:

The NIHR regularly seek members of the public to join a research panel or board, which prioritises research by the organisation.

When can you help?

This opportunity is ongoing. The NIHR list latest panel or board vacancies on their website. Click the button below to see the current opportunities.

How can you help?

Attend a meeting a few times a year, to raise possible issues around research from a patient perspective. Meetings are also attended by clinicians and researchers.

Expenses are covered and you may be eligible for a small payment for your time. Training and support in the role is also available.

Any questions?

You can email or call the PPI team on 023 8059 9302.


Date added: December 2015

Research body: The National Institute for Health Research (NIHR) and University of Oxford

You can help if:

You have been affected by a rare type of osteoporosis, such as osteoporosis associated with pregnancy or idiopathic juvenile osteoporosis.

About the study:

This study is looking to improve understanding of rare bone, joint and blood vessel diseases, so new tests and treatments can be developed for them.

When can you help?

Ongoing, over a period of five years.

How can you help?

By completing and updating an online profile and family map, and a number of online questionnaires.

To take part, you need to give permission for the researchers to access your NHS and social care records.

Any questions?

You can find out more about the RUDY study by downloading the participant information or visiting the RUDY website.


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