Osteoporosis and Bone Research Academy

Patient advocates for the Academy

So the needs of people with osteoporosis are at the heart of all the research we do, at least two patient advocates sit on each of our three Academy Working Groups: Causes, Technology and Effectiveness.

Our patient advocates have the knowledge and experience to provide a unique and valuable perspective, which helps shape the development of the Academy’s research.

The patient advocate members of the Academy Working Groups champion the work of the Academy, by:

  • representing what patients and carers need from future research (including priorities and concerns)
  • influencing how new areas of osteoporosis care are designed and delivered
  • advocating for people living with osteoporosis, so that new research also focuses on helping people live well with the condition
  • ensuring proposed research studies are easy for people with osteoporosis to successfully take part in

These perspectives are not often addressed by researchers and clinicians, who naturally focus more on the scientific evidence, research methods, and value for money.

What do patient advocates do?

Patient advocate members of an Academy Working Group:

  • attend Academy Working Group meetings (including teleconferences), usually three per year, in London or near Bath (at the charity’s offices)
  • review research reports
  • work together with the other patient advocates, to discuss and collate the views of people with osteoporosis and their carers
  • (potentially) attend other meetings or events to report on the work of the Academy

Interested in becoming a patient advocate for the Academy?

The position of patient advocate is offered on a voluntary unpaid basis. Any travelling expenses incurred to attend meetings are reimbursed in line with the charity’s Travel and Subsistence Policy.

For further details on the role of a patient advocate please download and read the following documents, or contact Dr Caroline Sangan, Research Manager via email on caroline.sangan@boneacademy.org.uk.