Our campaigning work

There are 3.5 million people living with osteoporosis in the UK and someone breaks a bone every minute because of it, yet only a quarter of adults know what the word means.

Considered, wrongly, as an inevitable part of getting older, we don’t hear the same conversations about osteoporosis as we do with other chronic conditions. It is known as a 'silent disease', but for people living with the condition it can be life-changing.

Our campaigning work is aiming to change that – breaking the silence on osteoporosis and the importance of bone health to achieve a future without osteoporosis.

Life with Osteoporosis Report: the untold story

We asked people living with osteoporosis across the UK to tell us what life is like for them, and how osteoporosis affects their everyday life. Over 3,000 people responded, sharing their stories.

Our Life with Osteoporosis 2021 report shows the severe impact the disease can have on people’s lives, their work and relationships. Read Life with Osteoporosis 2021

We’ll be using the report to influence Government and policy makers to do better for people with osteoporosis. Find out more and get involved.

All-Party Parliamentary Group

We have launched the All-Party Parliamentary Group on Osteoporosis and Bone Health, and provide the Secretariat for the group.

All-Party Parliamentary Groups (APPGs) are cross-party groups of parliamentarians, from both the House of Commons and the House of Lords, that meet to discuss a particular issue of concern. These groups involve other interested parties and offer the opportunity to raise awareness of a topic and drive forward work in the area.

Meetings have taken place throughout 2021. Find out more.

Policy manifesto

Osteoporosis affects 3.5m people in the UK, but it’s known as the "silent disease", because of under-diagnosis, under-treatment and low public awareness. Now is the time to break the personal, societal and financial impact, and take action to put an end to the dire consequences of fractures.

Read our policy manifesto:

Breaking the Silence - A Manifesto for a Future without Osteoporosis

Get involved

World Osteoporosis Day 2021 Virtual Mass Lobby of Parliament

3.5 million people across the UK are living with osteoporosis – that’s an average of 5,385 per Parliamentary constituency. Yet despite this, osteoporosis was mentioned only 31 times in Parliament between 2015-2020, primarily due to a lack of awareness about the disease.

Parliamentarians, whether in the UK Parliament, Welsh Senedd, Scottish Parliament or Northern Ireland Assembly all have a significant influence over health policy and priorities. But in order for osteoporosis to move higher up the list of priorities, we need your help to raise awareness.

Find out more about lobbying your MP or other elected official.

You stay up to date with all of our campaigning work by following us on social media @RoyalOsteoSoc.


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